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Bibliographies:  Down Syndrome

Retrieved from the Internet
September 2003

The purpose of this webliography is to help consumers and professionals identify web sites that have information on Down Syndrome.

Web Sites:

American Family Physician
http://www.findarticles.com/cf_dls/m3225/mag.jhtml

This clinical journal published by the Academy of Family Physicians, focuses on diagnostic and therapeutic techniques in the primary care medical field.


Denver Adult Down Syndrome Clinic
http://www.mhdsa.org/AdultDSClinic.htm

The Denver Adult Down Syndrome Clinic provides medical screenings for conditions associated with Down Syndrome, as well as initial development assessments. After a patient’s evaluation, a detailed report is sent to the patient, family, care provider, staff, and the patient’s physician as requested.

The Clinic is the only one of its kind in the Rocky Mountain region.


Down Syndrome
http://www.denison.edu/dsq

Down Syndrome Quarterly is an interdisciplinary journal devoted to advancing the state of knowledge on Down Syndrome and will cover all areas of medical, behavioral, and social scientific research.

The Down Syndrome Information Network Library
http://www.down-syndrome.net/library/

Contains archives of articles, books and papers about issues relevant to Down Syndrome.


Down Syndrome ( Materials from Brookes Publishing)
http://www.brookespublishing.com/store/downsyndrome.htm

Brookes publishes highly respected resources in early childhood, early intervention, inclusive and special education, learning disabilities, literacy, communication and language, behavior, mental health, and developmental disabilities, including Down Syndrome.


Down Syndrome on the Internet
http://www.downsyndrome.com/

Features comprehensive websites on an international level and medical resources on Down Syndrome for parents.


Down Syndrome Research Online Advocacy Group (DS Research, Inc.)
http://www.dsresearch.org/

This is a non-profit scientific and educational effort aimed at increasing public understanding and support for clinical and biomedical research into Down Syndrome.


Down’s Syndrome and Stuttering
http://www.stuttersfa.org/download/0066down.pdf

This leaflet is designed to help people who have Down’s Syndrome, or who care for and work with people who have Down’s Syndrome to understand the problem of dysfluency in speech. People with Down’s Syndrome are born with an extra chromosome as a result of a genetic accident before or around the time of conception.

How to Treat People with Down Syndrome – Some Tips for Family Physicians
http://www.nas.com/downsyn/trumble.html

National Association for Down Syndrome (NADS)
http://www.nads.org/

NADS is a not-for-profit organization founded in Chicago in 1961 by parents of children with Down Syndrome who felt a need to create a better environment and bring about understanding and acceptance of people with Down Syndrome.


National Down Syndrome Society (NDSS) http://www.ndss.org/

The National Down Syndrome Society was established in 1979 to ensure that all people with Down Syndrome have the opportunity to achieve their full potential in community life.


National Information Center for Children and Youth with Disabilities (NICHCY)
http://www.nichcy.org/pubs/factshe/fs4.pdf

Provides a fact sheet of general information about Down Syndrome.


TNI Information
http://members.aol.com/The Ragans/index.html

Contains information related to Trisonomy 21 Research Foundation, Inc. and to TNI (Targeted Nutritional Intervention) as is used in the treatment of children with Down Syndrome.


WebMD Health
http://my.webmd.com/hw/raising_a_family/hw167778.asp

 

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