Books:
Baker, Patricia. EAEDC. Advocacy
Guide. An Advocate's Guide to Emergency Aid to Elders,
Disabled, and Children in Massachusetts. Boston: Continuing
Legal Education, 1998.
Barr, Vickie M. Heath National
Resource Directory on Post - Secondary Education and Disability.
Collingdale: DIANE Pub., 1997.
Bateman, Neil. Advocacy Skills. A
Handbook for Human Service Professionals. [n.p.] Arena,
1995.
Blau, Sheldon P. How to Get Out of
the Hospital Alive. A Guide to Patient Power. New York:
Book Sales, Inc., 2000.
Bootel, Jaclyn A. CEC Special
Education Advocacy Handbook. Reston, VA: Council on Exceptional
Children, 1995.
Boyer, Carol and Dan Wendling. NARIC
Guide to Resources for the Americans with Disabilities Act
(ADA). 2d ed. Silver Spring, MD: NARIC, 1996.
Carlson, Eric M. Long-Term Care
Advocacy. NY: Matthew Bender, 1999.
Craig, Yvonne. Advocacy, Counseling
and Mediation in Casework: Processes of Empowerment. London:
Jessica Kingsley Pub., 1998.
D'Alessandro, Alex. Patient Advocacy
Strategies for Managed Care. Clearwater: Of Course Pubs.,
1998.
Dybwad, Gunnar, et al. New Voices:
Self-Advocacy by Persons with Disabilities. Cambridge,
MA: Brookline Books, 1996.
Finitzo, Terese, et al. From Advocacy
to Intervention: Steps for Successful Establishment of Universal
Hearing Detection Programs. Rockville: American Speech-Language
Hearing Assoc., 1998.
Garner, Philip. Advocacy, Self-Advocacy
and Special Needs. [n.p.] David Fulton Publishers, 1995.
Goodley, Dan. Self-Advocacy in
the Lives of People With Learning Difficulties: The Politics
of Resilience. Buckingham: Open University Pr., 2000.
Guide to Disability and Rehabilitation
Periodicals. Collingdale, DIANE Pub., 1996.
Hawes, Joseph M. The Children's
Right Movement. A History of Advocacy and Protection.
Collingdale: DIANE Pub., 1999.
Hyam, Michael. Advocacy Skills.
London: Blackstone Pr., 1999.
International League of Societies
for Persons with Mental Handicap. The Belief, Values, and
Principles of Self-Advocacy. Cambridge, MA: Brookline
Books, 1996.
Jensen, Mary A., et al. Issues
and Advocacy in Early Childhood Education. Needham Heights:
Allyn & Bacon, 1999.
Judd, Lewis. National Plan for
Research on Child and Adolescent Mental Disorders. Collingdale:
DIANE Pub., 2000 (projected pub. Date).
Malloy, JoAnne M. Benefits Planning
for Children and Youth with Disabilities. Durham, NH:
Institute on Disability, 1995.
Mnookin, Robert H. In the Interests
of Children: Advocacy, Law, Reform and Public Policy.
Cambridge: Program on Negotiation at Harvard law School, 1996.
Noble, John H. A legacy of Failure:
The Inability of the Federal-State Vocational Rehabilitation
System to Serve People with Severe Mental Illnesses. Collingdale:
DIANE Pub., 2000.
Phillips, Lauren. In the Name
of the Patient: Consumer Advocacy in Health Care. Chicago:
American Hospital Association, 1995.
Powers, L.E., et al., eds. On
the Road to Autonomy. Baltimore: Paul H. Brookes, 1996.
Richards, Bob, et al. Putting
the Patient First. Up Front with Advocacy and Community Service.
Englewood: Medical Group Management Association/Center for
Research in Ambulatory Health Care Administration, 1997.
Sands, Deanna J., and Michael Wehmeyer,
eds. Self-Determination Across the Life Span: Independence
and Choice for People with Disabilities. Baltimore: Paul
H. Brookes, 1996.
Sass, Hans-Martin, et al. Advance
Directives and Surrogate Decision-Making in Health Care,
United States, Germany, and Japan. Baltimore: Johns
Hopkins Univ. Pr., 1998.
Schneider, Robert, et al. Advocacy
in Social Work. A New Framework in Action. Belmont: Wadsworth
Pub., 2000.
Stuesser, Lee. An Advocacy Primer.
Scarborough: Carswell, 1997.
Sumner, G. Project Alliance: A
Job Retention Program for Employees with Chronic Illnesses
and Their Employers. NY: National Multiple Sclerosis Society,
1995.
Swain, John, et al. Therapy and
Learning Difficulties, Advocacy, Participation and Partnership.
Woburn: Butterworth-Heinemann, 1999.
Teasdale, Kevin. Advocacy in Health
Care. Malden: Blackwell Science, 1999.
Tompkins, James R., et al. Child
Advocacy. History, Theory and Practice. Durham: Carolina
Academic Pr., 1998.
Turnbull, Ann P., and H. R. Turnbull.
Families, Professionals, and Exceptionality: A Special
Partnership. 3d ed. Upper Saddle River, NJ: Prentice Hall,
1996.
Uncovering the Mysteries of Your
Learning Disability: Discovery, Self-Awareness, Self-Advocacy.
Minneapolis: LDinfo Pub., 2000.
Wehmeyer, M.L., et al. Teaching
Self-Determination to Students with Disabilities: Basic Skills
for Successful Transition. Baltimore: Paul H. Brookes,
1998.
Wingerson, Lois. Patient Resources
on the Internet, 1997 Guide to health Care Professionals.
NY: Faulkner and Gray, 1997.
Journal Articles:
Bambara, L.M, et al. "Translating
Self-Determination Concepts Into Support for Adults with Severe
Disabilities." Journal of the Association for Persons
with Severe Handicaps, vol. 23, 1998, pp. 27-38.
Brown, F., et al. "Self-Determination
for Individuals with the Most Severe Disabilities: Moving
Beyond Chimera." Journal of the Association for Persons
with Severe Handicaps, vol. 23, 1998, pp. 17-26.
Cassel, C.K., et al. "Restructuring
Medicare for the Next Century." Health Aff (Millwood),
vol. 18, #1, Jan/Feb 1999, pp. 118-31.
Jerman, S. L., et al. "Promoting
Self-Determination: Using Take Action to Teach Goal Attainment."
Career Development for Exceptional Individuals, vol. 23,
2000, pp. 27-38.
McGinley, Kathleen. "Family
Opportunity Act: Hot Issue on Capitol Hill." Exceptional
Parent Magazine, vol. 30 #10, Oct. 2000, p. 44.
Rumrill, Phillip, et al. "Issues
in Employment and Career Development for People with Multiple
Sclerosis: Meeting the Needs of an Emerging Vocational Rehabilitation
Clientele." J of Vocational Rehab, vol. 14, 2000,
pp. 109-117.
Smith, J. David. "Looking Backward,
Looking Forward: Mental Retardation and the Question of Equality
in the New Millennium." Mental Retardation, vol.
38 #5, Oct. 2000, pp. 457-59.
Stalker, K., and P.Harris. "The
Exercise of Choice by Adults with Intellectual Disabilities.
A Literature Review." Journal of Applied Research
in Intellectual Disabilities, vol. 11, 1998, pp. 60-76.
Wehmeyer, M. L. "A Functional
Model of Self-Determination: Describing Development and Implementing
Instruction." Focus on Autism and Other Developmental
Disabilities, vol. 14, 1999, pp. 53-61.
"How Self-Determined are People
with Mental Retardation?'" Mental Retardation,vol.
33, 1995, pp. 111-119.
"Individual and
Environmental Factors Related to the Self-Determination of
Adults with Mental Retardation." J of Vocational Rehab,
vol. 5, 1995, pp. 291-305.
Wehmeyer, M. L. and Schwartz, M.
"The Self-Determination Focus of Transition Goals for
Students with Mental Retardation." Career Development
for Exceptional Individuals, vol. 21, 1998, pp. 75-86.
Zhang, D. "The Effects of Self-Determination
Instruction on High School Students with Mild Disabilities."
Louisiana Education Research Journal,vol. 25 #1, 2000,
pp. 29-54.
Videos:
The following are available from
Advocating Change Together, Inc., St. Paul, Minnesota,
1-800-641-0059.
- Changing Attitudes. Perfect for
staffing training, self-advocacy gatherings, and anyone
working to improve service systems. 20 min.
- Disability Identity and Culture.
Ideal for audiences seeking a deeper understanding of disability
from a minority and cultural perspective. 22 min.
- Getting Organized. 29 min.
- Lasting leadership: Popular Education
and Self-Advocacy. A Guide for Facilitators, 1999.
- Leading Change. Profiles in grassroots
leadership. 26 min.
- My Choice, Your Decision. 30 min.
- Self-Advocacy: Freedom, Equality,
and Justice for All. A must for those who promote disability
as an emerging civil rights movement. 29 min.
- Shaking Off Stereotypes, 1996.
- Sticks and Stones, 1999.
The following are available from
Program Development Associates, 1-800-543-2119.
- Advocacy is Not a Four-letter
Word.
- The Power of Empowerment. 23 min.
- This is Your Right. A two-part
program that uses humor to advocate for change.
- Unfinished Business. Provides
a new perspective to an ages-old issue and is the ideal
introduction to disability awareness.
- Waddie Welcome. A Circle of Friends,
Persons.
- What is Self-Determination and
How to Make it Work.
- Whose Decision Is It Anyway?
Web Sites:
The American Association of People
with Disabilities
http://www.aapd-dc.org/
The Arc of the United States
http://www.thearc.org
Disability Law Center
http://www.disabilitylawcenter.org/
Institute of Community Integration
http://ici.umn.edu/default.html
The N. Neal Pike Institute on Law
and Disability
http://www.bu.edu/pike/home.html
The Protection and Advocacy System
(local NM)
http://www.nmpanda.org/index2.html
SHHH: Self-Help for Hard of Hearing
People
http://www.shhh.org/
U.S. Department of Justice ADA Homepage
http://www.usdoj.gov/crt/ada/adahom1.htm
The Work Site
http://www.ssa.gov/work/
