Library & Information Network for the Community
Bibliography on Prader-Willi
Syndrome
1990-2003
Prepared
January 29, 2004
The purpose of this bibliography is to help consumers and professionals identify books, journal articles, journal titles, articles on the web, and/or web sites, that discuss the subject Prader-Willi Syndrome. Not all of the listed materials are owned by LINC, and, not all of the materials have been reviewed by staff. Materials have been included based on publication date and perceived relevancy, and includes those publications from 1990-2004.
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Borgie,
Karen H. (1994). Nutrition care for children with Prader-Willi syndrome:
a
nutrition guide for parents of children with Prader-Willi Syndrome ages 3- 9
years.
Newport Beach, CA :
Prader-Willi California Foundation.
Cassidy, Suzanne B.
(1992). Prader-Willi syndrome and other chromosome15q deletion disorders.
Berlin; New York: Springer-Verlag.
Cassidy S (1995). Genetics
of Prader-Willi Syndrome : management of Prader-Willi syndrome (2nd ed) New
York: Springer-Verlag.
Couch, Cheryl. (2000) My
rag doll: a mothers journal of raising and loving a child with Prader-Willi
syndrome. Meridianville, Ala.:
Couch Pub.
Downey D, Knutson C.
(1995). Speech and language Issues In Management of Prader- Willi syndrome (2nd
ed.) New York: Springer-Verlag 142-155.
Eiholzer, Urs. (2001) Prader-Willi
syndrome: effects of human growth hormone treatment. Basel.
New York: Karger.
Greenswag,
Louise R.; Alexander, Randell C. (1995)
Management o f Prader-Willi syndrome. New York : Springer-Verlag.
James, Terrance N.;
Brown, Roy I. (1992). Prader-Willi
syndrome: home, school and communities. London; New York: San
Diego, Calif.: Chapman & Hall.
Neason, Shirley Ann
(1994). Prader-Willi syndrome: a handbook for parents. St. Louis Park,
MN : Prader-Willi Syndrome Association.
Prader-Willi
syndrome
(1994). Albuquerque, New Mexico: The Project.
Prader-Willi
& you. (1991). St. Louis, MO: Prader-Willi Syndrome Association.
Sadler D. (1995). Nutritional
management: management of Prader-Willi syndrome (2nd ed). New York: Springer-Verlag. 88- 114.
Waters,
Jackie. (1999). Prader-Willi syndrome: a practical guide. London: D.
Fulton Publishers.
Whitman,
Barbara Y.; Cassidy, Suzanne B. (2001).
Prader-Willi syndrome the early years. Sarasota, FL.
Prader-Willi Syndrome Association.
Whitman B &
Greenswag L (1995). Psychological and behavioral management. Management of Prader-Willi Syndrome (2nd
ed.). New York: Springer-Verlag. pp 125-141.
Whittington,
Joyce.; Holland, Tony. (2004). Prader Willi Syndrome: development and manifestations. New
York: Cambridge University Press.
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Cassidy SB. (1997).
Prader-Willi Syndrome: syndrome of the month. Journal of Medical Genetics,
34 917-923.
Conners, Frances A.;
Rosenquist, Celia J.; Atwell, Julie A.; Klinger, Laura Grofer. (2000) Cognitive
strengths and weaknesses associated with Prader-Willi Syndrome. Education
and Training in Mental Retardation and Developmental Disabilities, 35 (4)
441-8.
Defloor, Truus; Van
Borsel, John; Curfs, Leopold. (2002). Articulation in Prader-Willi
Syndrome. Journal of Communication
Disorders, 35 (3) 261-82.
Dimitropoulos, A.;
Feurer, I. D.; Butler, MG. ( 2001) Emergence of compulsive behavior and
tantrums in children with Prader-Willi Syndrome. American Journal on Mental Retardation, 106 (1) 39-51.
Dykens, EM. ; Hodapp, RM; Walsh, KK. & Nash, L.
(1992). Profiles, correlates, and trajectories of intelligence in Prader-Willi
Syndrome. Journal of the American Academy of Child and Adolescent Psychiatry,
31 1125-1130.
Fidler,
Deborah J.; Hodapp, Robert M.; Dykens, Elisabeth M. (2002). Behavioral
phenotypes and special education: parent report of educational issues for
children with Down Syndrome, Prader-Willi Syndrome, and Williams Syndrome. The Journal of Special Education, 36
(2), 80-8.
Hellings, JA. ; Warnock,
JK. (1994). Self-injurious behavior and Serotonin in Prader-Willi Syndrome. Psychopharmacology
Bulletin, 30:245-250.
Hodapp, RM.; Dykens, EM.
& Masino, L. (1997). Stress and support in families of persons with
Prader-Willi syndrome. Journal of Autism and Developmental Disorders, 27:11-24.
Joseph,
Beth; Egli, Mark; Koppekin, Amy.
(2002). Food choice in people with Prader-Willi Syndrome: quantity and relative
preference. American Journal on Mental Retardation, 107 (2) 128-35.
Levine K, Wharton R
& Fragala M (1993). Educational considerations for children with
Prader-Willi Syndrome and their families. Prader-Willi Perspectives,
1(3): 3-9.
Wigren,
Margareta; Heimann, Mikael. (2001). Excessive picking in Prader-Willi Syndrome:
a pilot study of phenomenological aspects and comorbid symptoms. International
Journal of Disability, Development and Education, 48 (2) 129-42.
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Videos
Waters,
Jackie.; Gellatly, Margaret.; Waters, Jackie. (2001) Babies and children
with Prader-Willi Syndrome : a handbook for parents and carers. Derby::
Prader-Willi Syndrome Association (UK).
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Goldberg
,Dena L.; Garrett, Christy L.; Riper, Cynthia Van; Warzak, William J. (2002).
Coping with Prader-Willi Syndrome {Electronic version]. Journal of the
American Dietetic Association.
April. Retrieved February 18, 2004 from http://www.findarticles.com/cf_dls/m0822/4_102/85005762/p1/article.jhtml
Wadsworth,
John S.; McBrien, Dianne M..; Harper, Dennis C. (2003). Vocational guidance and
employment of persons with a diagnosis of Prader-Willi Syndrome. [Electronic version]. Journal of
Rehabilitation, January-March. Retrieved February 18, 2004, from http://www.findarticles.com/cf_dls/m0825/1_69/98253972/p1/article.jhtml
Fidler, Deborah J.;
Hodapp, Robert M.; Dykens, Elizabeth M. (2002). Behavioral phenotypes and
special education: parent report of educational issues for children with Down
syndrome, Prader-Willi syndrome, and Williams [Electronic version]. Journal
of Special Education, June 22. Retrieved February 18, 2004.from http://www.findarticles.com/cf_0/m0HDF/2_36/89926493/p1/article.jhtml
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Prader-Willi
perspectives : a journal of Prader-Willi syndrome information for parents &
professionals.
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Prader-Willi Syndrome Association (USA) Web Site
Ontario Prader-Willi Syndrome
Association
International PWS Organization
The Prader-Willi Syndrome
Association (UK)
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