Library & Information Network for the Community
Bibliography on Cleft Lip
and Palate
1990-2004
Prepared
March 2004
The purpose of this bibliography is to help consumers and professionals identify books, journal articles, journal titles, articles on the web, and/or web sites, that discuss the subject of Cleft Palate. Not all of the listed materials are owned by LINC, and, not all of the materials have been reviewed by staff. Materials have been included based on publication date and perceived relevancy, and includes those publications from 1990-2003.
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Burglehaus, Maria T. (2002). Stop singing, people might hear you: my cleft book.
Calgary: M. T. Burglehaus.
Bzoch, Kenneth R. (2004). Communicative disorders related to cleft lip and palate.
Austin, TX: PRO-ED.
Cleft lip and palate: a resource guide for families. (1993). Milwaukee, WI.: Maxishare.
Cleft lip and cleft palate: the first four years. (1999). Chapel Hill, NC: Cleft Palate Foundation.
Golding-Kushner, Karen J. (2001). Therapy techniques for cleft palate speech and related disorders. San Diego, CA: Singular.
Gruman-Trinkner, Carrie T. (2001). Your cleft-affected child: the complete book of information, resources and hope. Alameda, CA: Hunter House.
Jacobs, Sonja. (2002). Needs, stressors and resources of parents with infants with cleft lip and palate. Pretoria: University of Pretoria. [Thesis].
Lynch, Joan I., Karnell, Michael P. (1999). Cleft lip and palate: the school-aged child. Chapel Hill, NC: Cleft Palate Foundation.
Lynch, Joan I. (1993). Curriculum for infants and toddlers with cleft palate developing speech and language. Austin, TX: Pro-ed.
Martin, Vanessa. (2004). Cleft care: a practical guide for health professionals on cleft lip and cleft palate. Salisbury, England: APS.
Moller, Karlind T. (1990). A parent’s guide to cleft lip and palate. Minnesota: University of Minneapolis Press.
Watson, A.C.H., Sell, D.A., Grunwell, Pamela. (2001). Management of cleft lip and palate. Philadelphia: Whurr.
Wyszynski, Diego F. (2002). Cleft lip and palate: from origin to treatment. New York: Oxford University Press.
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Bartlette, Donald. (1999). Dr. Donald Bartlette. Staley Lecture Series, delivered at Winona Lake, Ind: Grace College and Theological Seminary.
Grundmann, Mike. (1998). Face first. Boston, MA.: Fanlight Productions.
Wexler, Andy. (2002). Andy’s story: changing children’s lives. Princeton, NJ: Films for the Humanities & Sciences.
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Breast-feeding the baby with special healthcare needs: cleft lip or palate and cystic fibrosis.
The Exceptional Parent, 29,(i11), 52.
Chernoff, Allan. (2004). The mouths of babes: cleft repairs of author’s twin daughters, Betsy and Elana. New York, 46(Jan. 5), 44-49, 97.
Cochrane, Vicky M., Slade, Pauline. (1999). Appraisal and coping in adults with cleft lip: associations with well-being and social anxiety. British Journal of Medical Psychology, 72(4), 485-503.
Edmondson, Rebecca, and Reinhartsen, Debra. (1998). The young child with cleft lip and palate: intervention needs in the first three years. Infants and Young Children, 11(2), 12-20.
Endriga, Marya C. and others. (2003). Emotion self-regulation in preschool-aged children with and without orofacial clefts. Journal of Developmental & Behavioral Pediatrics, 24(5), 336-344.
Lockhart, Elaine. (2003). Mental health needs of children and adolescents with cleft lip and/or palate. Clinical Child Psychology & Psychiatry, 8(1), 7-16.
Marcusson, Agneta and others. (2001). Quality of life in adults with repaired complete cleft lip and palate. Cleft Palate-Craniofacial Journal, 38(4), 379-385.
Moran, Michael J. and Pentz, Arthur L. (1995). Helping the child with a cleft palate in your classroom. TEACHING Exception Children,27(3),46-48.
Muha, Laura. (2001). The two faces of Reece. Parents, 76(6), 61-65.
Savage, Hallie E. (1997). An early intervention guide to infants born with clefts. Infant-Toddler Intervention: the transdisciplinary journal, 7(4), 271-284.
Savage, Hallie E. and others. (1994). A developmental perspective on assessment of infants with clefts and related disorders. Infant-Toddler Intervention: the transdisciplinary journal,4(3), 221-234.
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Articles
on the Web
Biavati, Michael J. & Bassichis, Benjamin. (2003). Cleft Palate. eMedicine.com. Retrieved March 24, 2004 from http://www.emedicine.com/ent/topic136.htm
Cleft lip and palete. (2000). Nemours Foundation, KidsHealth for Parents. Retrieved March 19, 2004 from http://www.kidshealth.org/parent/medical/ears/cleft_lip_palate.html
Cleft lip and cleft palate. (2001). March of Dimes. Retrieved March 19, 2004 from http://www.marchofdimes.com/professionals/681_1210.asp
Cleft lip and palate. (2000). Nemours Foundation, KidsHealth for Parents. Retrieved March 19, 2004 from http://kidshealth.org/parent/medical/ears/cleft_lip_palate.html
Cleft lip and
cleft palate: parents’ guide to caring for a child with cleft lip or cleft
palate. (1997). [California:
University of California, Children’s Health.] Retrieved March 24, 2004 from http://www.medic8.com/healthguide/articles/cleftlip.html
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Cleft lip and palate bibliography. http://ibis-birthdefects.org/start/clefbib.htm
Parentbooks. Facial Difference. http://www.parentbooks.ca/Facial_Difference.html
Selected bibliography for parents of children with cleft lip/palate. http://www.cleftline.org/publications/bibliography.htm
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AboutFace International. http://www.aboutfaceinternational.org
Children’s Corrective Society. http://www.coad.org/
Cleft Palate Foundation. http://www.cleftline.org
March of Dimes. http://www.modimes.com
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Cleft.net. http://cleft.craniology.org/
Cleft Palate. http://home.comcast.net/~speechguide/cleft.html
MedlinePlus. Cleft lip and palate. http://www.nlm.nih.gov/medlineplus/cleftlipandpalate.html
Pierre Robin Network. http://www.pierrerobin.org/cleftpalate.html
Prescription Parents. http://www.samizdat.com/pp1.html
Smiles. http://www.cleft.org/
What you need to know about. http://dentistry.about.com/cs/cleftlippalate/index.htm
Wide Smiles. http://www.widesmiles.org