http://www.acf.dhhs.gov/programs/add/
The home of the federal agency that oversees government policies and programs, the ADD web site provides information about developmental disabilities policies, programs, state activities, events, staff, links, and related information.
The Alzheimer’s Association is the largest national voluntary organization dedicated to conquering Alzheimer’s disease through research and providing assistance and support to affected families. The web site features separate sections for people with Alzheimer’s, family caregivers and friends, physicians and health care professionals, researchers, and the media.
http://www.aapd.com/docs/info.html
AAPD is the largest nonprofit, nonpartisan, cross-disability organization in the United States. The web site has links to many disability sites, a news area, as well as a career center.
http://www.aamr.org/index.shtml
AAMR promotes progressive policies, sound research, effective practices, and universal human rights for people with intellectual disabilities. The web site has FAQs on topics such as home ownership, human rights, self-advocacy, and person and family centered planning.
The ADA Technical Assistance Program has created a vast infrastructure of resources, including numerous ADA publications and video, materials targeted to specific audiences, and training packages.
The ADA information Center provides training, information, and technical assistance on the Americans with Disabilities Act (ADA) to businesses, consumers, state and local governments.
The Arc promotes Grassroots Advocacy to help families to obtain specialized services locally and to understand current proposals affecting them pending before the state legislature so that they can contribute their own input to the legislature process.
http://www.thearc.org/index.htm
Promotes grassroots advocacy to help families to obtain specialized services locally and to understand current proposals affecting them pending before the state legislature so that they can contribute their own input to the legislature process.
A network of interdisciplinary centers advancing policy and practice for and with individuals with developmental and other disabilities, their families and communities.
http://www.urmc.rochester.edu/autism/index.html
Provides information about autism research for parents, clinicians and other research investigators.
http://www.autismgeneticresearch.org/
A collaborative group…
“The website of this national organization has information, resources, and interactive opportunities. Topics range from “The Road to Rehabilitation” to the costs and causes of brain injury. You’ll find a kids corner, conference listings, and a chat room. Many of the documents are in pdf format.”
http://www.gwumc.edu/ihpov/study.htm
The Center for the Study and Advancement of Disability Policy conducts research and analysis of complex public policy issues affecting individuals with disabilities and their caregivers.
The mission of the Continuum of Care is to increase the capacity of New Mexico’s health care system to provide lifelong quality health care for people with developmental disabilities and related conditions. It helps health care professionals be more knowledgeable and competent in dealing with developmental disabilities and in delivering services in a culturally sensitive way that respects individuals’ preferences, honors personal values and promotes quality of life.
The CEC advocates for appropriate governmental policies, sets professional standards, provides continual professional development, advocates for newly and historically underserved individuals with exceptionalities, and helps professionals obtain conditions and resources necessary for effective professional practice.
The Council for Exceptional Children (CEC) is the largest international professional organization dedicated to improving educational outcomes for individuals with exceptionalities, students with disabilities, and/or the gifted.
http://www.disabilitiesresources.org/
This award winning newsletter monitors, reviews and reports on resources for independent living. Each issue features short topical articles, reviews, and news about free, inexpensive, and hard-to-find books, pamphlets, videotapes, online sources, and organizations. DRM provides objective, professional guidance to libraries, independent living centers, disability advocates, rehabilitation facilities, Ots and PTs, educators, health and social service providers, and interested consumers and family members.
The Foundation’s web site offers a wealth of information and resources for individuals with epilepsy and their family members, health care providers, researchers, and the general public. Visitors will find consumer information, current news and publications, the latest research, a kids club, and more.
Works to empower organizations to effectively integrate new online strategies, strengthening their program and policies to work on behalf of people in need.
The Michigan Department of Community Health is responsible for health policy and management of the state’s publicity-funded health service systems.
Presents summaries of linked articles and a comprehensive directory of jobs, advocacy groups, service centers, and forums.
A useful site for people who need information on this condition, links to other professional sites, a newsletter and message posting is available.
http://www.ed.gov/offices/OSERS/NIDRR/
Part of the U.S. Department of Education’s Office of Special Education and Rehabilitative Services, NIDRR “provides leadership and support for a comprehensive program of research related to the rehabilitation of individuals with disabilities.” NIDRR is a major funding resource for disability research; its web site lists NIDRR-funded projects, publications, and related resources.
(Bibliography on Disability awareness and changing attitudes)
http://www.rit.edu/~easi/pubs/ezbib2.htm
The National Library Service for the Blind and Physically Handicapped (NLS), Library of Congress, administers the free program that loans recorded and braille books and magazines, music scores in braille and large print, and specially designed playback equipment to residents of the United States who are unable to read or use standard print materials because of visual or physical impairment. The web site offers reference publications as well as bibliographic materials and access to technical and other writings on a wide variety of subjects related to disability.
Collects and disseminates results of federally funded research projects; has a literature database describing over 55,000 disability –related journal articles, commercially published books, and audiovisuals; other databases.
http://www.neuro.pmr.vcu.edu/default/Main.htm
Provides information for professionals, persons with brain injury, and family members. Also develops intervention programs, and assessment tools.
“Our mission is to remove architectural and attitudinal barriers to the full and equal participation and integration of persons with disabilities into society through education, training, building code development, advocacy and legislation.”
http://www.uic.edu/org/rrcamr/
For researchers, planners, providers, self-advocates, families and students in the fields of aging and mental retardation. It is housed within the Department of Disability and Human Development at the University of Illinois in Chicago.
Charged with preparing the US workforce and insuring the adequacy of the workplace.
The Department of Health and Human Services is the United States government’s principal agency for protecting the health of all Americans and providing essential human services, especially for those who are least able to help themselves.
http://hhs.gov/topics/disabilities.html
List of disability sites and fact sheets.
http://newfederalism.urban.org/html/anf_a9.htm
The nonpartisan Urban Institute publishes studies, reports, and books on topics worthy of public consideration.