Advocacy
Books:
Baker,
Patricia. EAEDC. Advocacy Guide. An Advocate's Guide to Emergency Aid to
Elders, Disabled, and Children in Massachusetts. Boston: Continuing Legal
Education, 1998.
Barr,
Vickie M. Heath National Resource Directory on Post - Secondary Education
and Disability. Collingdale: DIANE Pub., 1997.
Bateman,
Neil. Advocacy Skills. A Handbook for Human Service Professionals.
[n.p.] Arena, 1995.
Blau,
Sheldon P. How to Get Out of the Hospital Alive. A Guide to Patient Power.
New York: Book Sales, Inc., 2000.
Bootel,
Jaclyn A. CEC Special Education Advocacy Handbook. Reston, VA: Council
on Exceptional Children, 1995.
Boyer,
Carol and Dan Wendling. NARIC Guide to Resources for the Americans with
Disabilities Act (ADA). 2d ed. Silver Spring, MD: NARIC, 1996.
Carlson,
Eric M. Long-Term Care Advocacy. NY: Matthew Bender, 1999.
Craig,
Yvonne. Advocacy, Counseling and Mediation in Casework: Processes of
Empowerment. London: Jessica Kingsley Pub., 1998.
D'Alessandro,
Alex. Patient Advocacy Strategies for Managed Care. Clearwater: Of
Course Pubs., 1998.
Dybwad,
Gunnar, et al. New Voices: Self-Advocacy by Persons with Disabilities.
Cambridge, MA: Brookline Books, 1996.
Finitzo,
Terese, et al. From Advocacy to Intervention: Steps for Successful
Establishment of Universal Hearing Detection Programs. Rockville: American
Speech-Language Hearing Assoc., 1998.
Garner,
Philip. Advocacy, Self-Advocacy and Special Needs. [n.p.] David Fulton
Publishers, 1995.
Goodley,
Dan. Self-Advocacy in the Lives of People With Learning Difficulties: The
Politics of Resilience. Buckingham: Open University Pr., 2000.
Guide
to Disability and Rehabilitation Periodicals. Collingdale, DIANE Pub., 1996.
Hawes,
Joseph M. The Children's Right Movement. A History of Advocacy and
Protection. Collingdale: DIANE Pub., 1999.
Hyam,
Michael. Advocacy Skills. London: Blackstone Pr., 1999.
International
League of Societies for Persons with Mental Handicap. The Belief, Values,
and Principles of Self-Advocacy. Cambridge, MA: Brookline Books, 1996.
Jensen,
Mary A., et al. Issues and Advocacy in Early Childhood Education.
Needham Heights: Allyn & Bacon, 1999.
Judd,
Lewis. National Plan for Research on Child and Adolescent Mental Disorders.
Collingdale: DIANE Pub., 2000 (projected pub. Date).
Malloy,
JoAnne M. Benefits Planning for Children and Youth with Disabilities.
Durham, NH: Institute on Disability, 1995.
Mnookin,
Robert H. In the Interests of
Children: Advocacy, Law, Reform and Public Policy. Cambridge: Program on
Negotiation at Harvard law School, 1996.
Noble,
John H. A legacy of Failure: The Inability of the Federal-State Vocational
Rehabilitation System to Serve People with Severe Mental Illnesses.
Collingdale: DIANE Pub., 2000.
Phillips,
Lauren. In the Name of the Patient: Consumer Advocacy in Health Care. Chicago:
American Hospital Association, 1995.
Powers,
L.E., et al., eds. On the Road to Autonomy. Baltimore: Paul H. Brookes,
1996.
Richards,
Bob, et al. Putting the Patient First. Up Front with Advocacy and Community
Service. Englewood: Medical Group Management Association/Center for
Research in Ambulatory Health Care Administration, 1997.
Sands,
Deanna J., and Michael Wehmeyer, eds. Self-Determination Across the Life
Span: Independence and Choice for People with Disabilities. Baltimore: Paul
H. Brookes, 1996.
Sass,
Hans-Martin, et al. Advance Directives and Surrogate Decision-Making in
Health Care, United States, Germany, and Japan. Baltimore: Johns
Hopkins Univ. Pr., 1998.
Schneider,
Robert, et al. Advocacy in Social Work. A New Framework in Action. Belmont:
Wadsworth Pub., 2000.
Stuesser,
Lee. An Advocacy Primer. Scarborough: Carswell, 1997.
Sumner,
G. Project Alliance: A Job Retention Program for Employees with Chronic
Illnesses and Their Employers. NY: National Multiple Sclerosis Society,
1995.
Swain,
John, et al. Therapy and Learning Difficulties, Advocacy, Participation and
Partnership. Woburn: Butterworth-Heinemann, 1999.
Teasdale,
Kevin. Advocacy in Health Care. Malden: Blackwell Science, 1999.
Tompkins,
James R., et al. Child Advocacy. History, Theory and Practice. Durham:
Carolina Academic Pr., 1998.
Turnbull,
Ann P., and H. R. Turnbull. Families,
Professionals, and Exceptionality: A Special Partnership. 3d ed. Upper
Saddle River, NJ: Prentice Hall, 1996.
Uncovering
the Mysteries of Your Learning Disability: Discovery, Self-Awareness,
Self-Advocacy. Minneapolis: LDinfo
Pub., 2000.
Wehmeyer,
M.L., et al. Teaching Self-Determination to Students with Disabilities:
Basic Skills for Successful Transition. Baltimore: Paul H. Brookes, 1998.
Wingerson,
Lois. Patient Resources on the Internet, 1997 Guide to health Care
Professionals. NY: Faulkner and Gray, 1997.
Journal
Articles:
Bambara,
L.M, et al. "Translating Self-Determination Concepts Into Support for
Adults with Severe Disabilities." Journal of the Association for
Persons with Severe Handicaps, vol. 23, 1998, pp. 27-38.
Brown,
F., et al. "Self-Determination for Individuals with the Most Severe
Disabilities: Moving Beyond Chimera." Journal of the Association for
Persons with Severe Handicaps, vol. 23, 1998, pp. 17-26.
Cassel,
C.K., et al. "Restructuring Medicare for the Next Century…" Health
Aff (Millwood), vol. 18, #1, Jan/Feb 1999, pp. 118-31.
Jerman,
S. L., et al. "Promoting Self-Determination: Using Take Action to Teach
Goal Attainment." Career Development for Exceptional Individuals, vol.
23, 2000, pp. 27-38.
McGinley,
Kathleen. "Family Opportunity Act: Hot Issue on Capitol Hill." Exceptional
Parent Magazine, vol. 30 #10, Oct. 2000, p. 44.
Rumrill,
Phillip, et al. "Issues in Employment and Career Development for People
with Multiple Sclerosis: Meeting the Needs of an Emerging Vocational
Rehabilitation Clientele." J of Vocational Rehab, vol. 14, 2000,
pp. 109-117.
Smith,
J. David. "Looking Backward, Looking Forward: Mental Retardation and the
Question of Equality in the New Millennium." Mental Retardation,
vol. 38 #5, Oct. 2000, pp. 457-59.
Stalker,
K., and P.Harris. "The Exercise of Choice by Adults with Intellectual
Disabilities. A Literature Review." Journal of Applied Research in
Intellectual Disabilities, vol. 11, 1998, pp. 60-76.
Wehmeyer,
M. L. "A Functional Model of Self-Determination: Describing Development
and Implementing Instruction." Focus on Autism and Other Developmental
Disabilities, vol. 14, 1999, pp. 53-61.
"How
Self-Determined are People with Mental Retardation?'" Mental
Retardation,vol. 33, 1995, pp. 111-119.
"Individual and Environmental Factors
Related to the Self-Determination of Adults with Mental Retardation." J
of Vocational Rehab, vol. 5, 1995, pp. 291-305.
Wehmeyer,
M. L. and Schwartz, M. "The Self-Determination Focus of Transition Goals
for Students with Mental Retardation." Career Development for
Exceptional Individuals, vol. 21, 1998, pp. 75-86.
Zhang,
D. "The Effects of Self-Determination Instruction on High School Students
with Mild Disabilities." Louisiana Education Research Journal,vol.
25 #1, 2000, pp. 29-54.
Videos:
The
following are available from Advocating Change Together, Inc., St. Paul,
Minnesota, 1-800-641-0059.
Changing
Attitudes. Perfect for staffing training, self-advocacy gatherings, and anyone
working to improve service systems. 20 min.
Disability
Identity and Culture. Ideal for audiences seeking a deeper understanding of
disability from a minority and cultural perspective. 22 min.
Getting
Organized. 29 min.
Lasting
leadership: Popular Education and Self-Advocacy. A Guide for Facilitators,
1999.
Leading
Change. Profiles in grassroots leadership. 26 min.
My
Choice, Your Decision. 30 min.
Self-Advocacy:
Freedom, Equality, and Justice for All. A must for those who promote disability
as an emerging civil rights movement. 29 min.
Shaking
Off Stereotypes, 1996.
Sticks
and Stones, 1999.
The
following are available from Program Development Associates, 1-800-543-2119.
Advocacy
is Not a Four-letter Word.
The
Power of Empowerment. 23 min.
This
is Your Right. A two-part program that uses humor to advocate for change.
Unfinished
Business. Provides a new perspective to an ages-old issue and is the ideal
introduction to disability awareness.
Waddie
Welcome. A Circle of Friends, Persons.
What
is Self-Determination and How to Make it Work.
Whose
Decision Is It Anyway?
Web
Sites:
The
American Association of People with Disabilities "The Spirit of ADA
Campaign" http://www.spiritofada.org
The
Arc of the United States
Disability
Law Center
Institute
of Community Integration
The
N. Neal Pike Institute on Law and Disability
The
Protection and Advocacy System
http://www.protectionandadvocacy,com/index.htm
SHHH:
Self-Help for Hard of Hearing People
U.S.
Department of Justice ADA Homepage
The
Work Site