Books:
Baker, Patricia. EAEDC. Advocacy Guide. An Advocate's Guide to Emergency Aid to Elders, Disabled, and Children in Massachusetts. Boston: Continuing Legal Education, 1998.
Barr, Vickie M. Heath National Resource Directory on Post - Secondary Education and Disability. Collingdale: DIANE Pub., 1997.
Bateman, Neil. Advocacy Skills. A Handbook for Human Service Professionals. [n.p.] Arena, 1995.
Blau, Sheldon P. How to Get Out of the Hospital Alive. A Guide to Patient Power. New York: Book Sales, Inc., 2000.
Bootel, Jaclyn A. CEC Special Education Advocacy Handbook. Reston, VA: Council on Exceptional Children, 1995.
Boyer, Carol and Dan Wendling. NARIC Guide to Resources for the Americans with Disabilities Act (ADA). 2d ed. Silver Spring, MD: NARIC, 1996.
Carlson, Eric M. Long-Term Care Advocacy. NY: Matthew Bender, 1999.
Craig, Yvonne. Advocacy, Counseling and Mediation in Casework: Processes of Empowerment. London: Jessica Kingsley Pub., 1998.
D'Alessandro, Alex. Patient Advocacy Strategies for Managed Care. Clearwater: Of Course Pubs., 1998.
Dybwad, Gunnar, et al. New Voices: Self-Advocacy by Persons with Disabilities. Cambridge, MA: Brookline Books, 1996.
Finitzo, Terese, et al. From Advocacy to Intervention: Steps for Successful Establishment of Universal Hearing Detection Programs. Rockville: American Speech-Language Hearing Assoc., 1998.
Garner, Philip. Advocacy, Self-Advocacy and Special Needs. [n.p.] David Fulton Publishers, 1995.
Goodley, Dan. Self-Advocacy in the Lives of People With Learning Difficulties: The Politics of Resilience. Buckingham: Open University Pr., 2000.
Guide to Disability and Rehabilitation Periodicals. Collingdale, DIANE Pub., 1996.
Hawes, Joseph M. The Children's Right Movement. A History of Advocacy and Protection. Collingdale: DIANE Pub., 1999.
Hyam, Michael. Advocacy Skills. London: Blackstone Pr., 1999.
International League of Societies for Persons with Mental Handicap. The Belief, Values, and Principles of Self-Advocacy. Cambridge, MA: Brookline Books, 1996.
Jensen, Mary A., et al. Issues and Advocacy in Early Childhood Education. Needham Heights: Allyn & Bacon, 1999.
Judd, Lewis. National Plan for Research on Child and Adolescent Mental Disorders. Collingdale: DIANE Pub., 2000 (projected pub. Date).
Malloy, JoAnne M. Benefits Planning for Children and Youth with Disabilities. Durham, NH: Institute on Disability, 1995.
Mnookin, Robert H. In the Interests of Children: Advocacy, Law, Reform and Public Policy. Cambridge: Program on Negotiation at Harvard law School, 1996.
Noble, John H. A legacy of Failure: The Inability of the Federal-State Vocational Rehabilitation System to Serve People with Severe Mental Illnesses. Collingdale: DIANE Pub., 2000.
Phillips, Lauren. In the Name of the Patient: Consumer Advocacy in Health Care. Chicago: American Hospital Association, 1995.
Powers, L.E., et al., eds. On the Road to Autonomy. Baltimore: Paul H. Brookes, 1996.
Richards, Bob, et al. Putting the Patient First. Up Front with Advocacy and Community Service. Englewood: Medical Group Management Association/Center for Research in Ambulatory Health Care Administration, 1997.
Sands, Deanna J., and Michael Wehmeyer, eds. Self-Determination Across the Life Span: Independence and Choice for People with Disabilities. Baltimore: Paul H. Brookes, 1996.
Sass, Hans-Martin, et al. Advance Directives and Surrogate Decision-Making in Health Care, United States, Germany, and Japan. Baltimore: Johns Hopkins Univ. Pr., 1998.
Schneider, Robert, et al. Advocacy in Social Work. A New Framework in Action. Belmont: Wadsworth Pub., 2000.
Stuesser, Lee. An Advocacy Primer. Scarborough: Carswell, 1997.
Sumner, G. Project Alliance: A Job Retention Program for Employees with Chronic Illnesses and Their Employers. NY: National Multiple Sclerosis Society, 1995.
Swain, John, et al. Therapy and Learning Difficulties, Advocacy, Participation and Partnership. Woburn: Butterworth-Heinemann, 1999.
Teasdale, Kevin. Advocacy in Health Care. Malden: Blackwell Science, 1999.
Tompkins, James R., et al. Child Advocacy. History, Theory and Practice. Durham: Carolina Academic Pr., 1998.
Turnbull, Ann P., and H. R. Turnbull. Families, Professionals, and Exceptionality: A Special Partnership. 3d ed. Upper Saddle River, NJ: Prentice Hall, 1996.
Uncovering the Mysteries of Your Learning Disability: Discovery, Self-Awareness, Self-Advocacy. Minneapolis: LDinfo Pub., 2000.
Wehmeyer, M.L., et al. Teaching Self-Determination to Students with Disabilities: Basic Skills for Successful Transition. Baltimore: Paul H. Brookes, 1998.
Wingerson, Lois. Patient Resources on the Internet, 1997 Guide to health Care Professionals. NY: Faulkner and Gray, 1997.
Journal Articles:
Bambara, L.M, et al. "Translating Self-Determination Concepts Into Support for Adults with Severe Disabilities." Journal of the Association for Persons with Severe Handicaps, vol. 23, 1998, pp. 27-38.
Brown, F., et al. "Self-Determination for Individuals with the Most Severe Disabilities: Moving Beyond Chimera." Journal of the Association for Persons with Severe Handicaps, vol. 23, 1998, pp. 17-26.
Cassel, C.K., et al. "Restructuring Medicare for the Next Century…" Health Aff (Millwood), vol. 18, #1, Jan/Feb 1999, pp. 118-31.
Jerman, S. L., et al. "Promoting Self-Determination: Using Take Action to Teach Goal Attainment." Career Development for Exceptional Individuals, vol. 23, 2000, pp. 27-38.
McGinley, Kathleen. "Family Opportunity Act: Hot Issue on Capitol Hill." Exceptional Parent Magazine, vol. 30 #10, Oct. 2000, p. 44.
Rumrill, Phillip, et al. "Issues in Employment and Career Development for People with Multiple Sclerosis: Meeting the Needs of an Emerging Vocational Rehabilitation Clientele." J of Vocational Rehab, vol. 14, 2000, pp. 109-117.
Smith, J. David. "Looking Backward, Looking Forward: Mental Retardation and the Question of Equality in the New Millennium." Mental Retardation, vol. 38 #5, Oct. 2000, pp. 457-59.
Stalker, K., and P.Harris. "The Exercise of Choice by Adults with Intellectual Disabilities. A Literature Review." Journal of Applied Research in Intellectual Disabilities, vol. 11, 1998, pp. 60-76.
Wehmeyer, M. L. "A Functional Model of Self-Determination: Describing Development and Implementing Instruction." Focus on Autism and Other Developmental Disabilities, vol. 14, 1999, pp. 53-61.
_____________. "How Self-Determined are People with Mental Retardation?'" Mental Retardation,vol. 33, 1995, pp. 111-119.
_____________. "Individual and Environmental Factors Related to the Self-Determination of Adults with Mental Retardation." J of Vocational Rehab, vol. 5, 1995, pp. 291-305.
Wehmeyer, M. L. and Schwartz, M. "The Self-Determination Focus of Transition Goals for Students with Mental Retardation." Career Development for Exceptional Individuals, vol. 21, 1998, pp. 75-86.
Zhang, D. "The Effects of Self-Determination Instruction on High School Students with Mild Disabilities." Louisiana Education Research Journal,vol. 25 #1, 2000, pp. 29-54.
Videos:
The following are available from Advocating Change Together, Inc., St. Paul, Minnesota, 1-800-641-0059.
Changing Attitudes. Perfect for staffing training, self-advocacy gatherings, and anyone working to improve service systems. 20 min.
Disability Identity and Culture. Ideal for audiences seeking a deeper understanding of disability from a minority and cultural perspective. 22 min.
Getting Organized. 29 min.
Lasting leadership: Popular Education and Self-Advocacy. A Guide for Facilitators, 1999.
Leading Change. Profiles in grassroots leadership. 26 min.
My Choice, Your Decision. 30 min.
Self-Advocacy: Freedom, Equality, and Justice for All. A must for those who promote disability as an emerging civil rights movement. 29 min.
Shaking Off Stereotypes, 1996.
Sticks and Stones, 1999.
The following are available from Program Development Associates, 1-800-543-2119.
Advocacy is Not a Four-letter Word.
The Power of Empowerment. 23 min.
This is Your Right. A two-part program that uses humor to advocate for change.
Unfinished Business. Provides a new perspective to an ages-old issue and is the ideal introduction to disability awareness.
Waddie Welcome. A Circle of Friends, Persons.
What is Self-Determination and How to Make it Work.
Whose Decision Is It Anyway?
Web Sites:
The American Association of People with Disabilities "The Spirit of ADA Campaign" URL: http://www.spiritofada.org
The Arc of the United States. URL: http://www.thearc.org
Disability Law Center. URL: http://www.dlcma.org
Institute of Community Integration. URL: http://www.ici.umn.edu
The N. Neal Pike Institute on Law and Disability. URL: http://www.bu.edu/law/pike
The Protection and Advocacy System. URL: http://www.protectionandadvocacy,com/index.htm
SHHH: Self-Help for Hard of Hearing People. URL: http://www.ssa.gov/work
U.S. Department of Justice ADA Homepage. URL: http://usdoj.gov/ada/adahom
The Work Site. URL: http://www.ssa.gov/work