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General Information: Usher Syndrome Resource Guide
Local Resources:
Project for NM Children & Youth Who Are Deafblind
Center for Development & Disability
Department of Pediatrics/UNM
2300 Menaul NE
Albuquerque, NM 87107
toll free (877) 614-4051
(505) 272-0321 (voice/TTY)
(505) 272-5280 (fax)
http://cdd.unm.edu/nmdb/nmdb.html
New Mexico Deaf-Blind Program
1435 S. St. Francis Dr.
Santa Fe, NM 87505-4083
(505) 827-7584 ext 111 (voice/TTY)
(800) 489-8536 (voice/TTY)
email: richelleh@doh.state.nm.us
National Resources:
Egroups:
Ushers
Join the listserve or peruse the site
American Association of the Deaf-Blind
AADB
814 Thayer Ave.
Silver Spring, MD 20910
(301) 588-6545 (voice/TTY)
(301) 588-8705 (fax)
email: aadb@erols.com
Boys Town National Research Hospital
Usher Syndrome Project
555 North 30th Street
Omaha, NE 68131
(402) 498-6556 (voice/TTY)
(402) 498-6631 (fax)
DB-LINK
The National Information Clearinghouse on Children Who Are Deaf-Blind
345 N. Monmouth Ave.
Monmouth, OR 97361
(800) 438-9376 (voice)
(800) 854-7013 (TTY)
email: dblink@wou.edu
RP Foundation Fighting Blindness
Executive Plaza, Suite 800
11350 McCormick Rd.
Hunt Valley, MD 21031
(800) 683-5555 (voice)
(410) 785-1414 (voice)
(800) 683-5551 (TTY)
Helen Keller National Center for Deaf-Blind Adults
111 Middleneck Road
Sand Point, NY 11050
(516) 944-8900 (voice/TTY)
(516) 944-7302 (fax)
National Technical
Assistance Consortium (NTAC) for Children and Young Adults Who Are Deaf-Blind
345 N. Monmouth Ave
Monmouth, OR 97361
(503) 838-8778 (voice)
(503) 838-8773 (voice)
(503) 838-8821 (TTY)
National Family Association for Deaf-Blind
111 Middle Neck Road
Sands Point, NY 11050
(800) 255-0411 ext 275
email: NFADB@aol.com
Newsletter
Usher Family Support
(A newsletter for families of people with Usher syndrome)
c/o Helen Anderson
4918 42nd Avenue South
Minneapolis, NM 55417
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Project for New Mexico Children and Youth Who Are Deaf-Blind
(877) 614-4051
For information concerning the website contact roseh@unm.edu
© 2003. All rights reserved.